I went to get my
hair cut today (always a fun event these days). As I was sitting waiting for my stylist, I was busy texting
my BC buddy Phyllis. Phyllis had
her bilateral mastectomies a few weeks ago and had some questions regarding
recovery. Our favorite surgeon,
Dr. C, has deployed since her surgery (remember, he’s an Army Reservist) and
she wasn’t getting quality answers from his sub, so I gave her my two
cents. I know how particular Dr. C
is about us healing properly after surgeries. He says it makes reconstruction easier if everything heals
correctly the first time. Seeing
how good my reconstruction looks after I sort of followed his explicit
instructions, I can’t fault the guy. ;0)
My hairstylist, K,
has a very dear friend who is a breast cancer survivor, so we BC girls are near
and dear to his heart. K has a big
heart anyway, but he’s always up for helping the community with anything
related to breast cancer. Anyway,
the last time I got my hair cut, his friend had just had a major cancer
setback. Naturally, my first
question to him today was to ask how she was doing. Thankfully, she’s okay at the moment - “okay” being a
relative term when you’re discussing cancer setbacks.
So, our
conversation wended its’ way through discussions of mutual friends and acquaintances
that have been through treatment or are going through treatment. Unfortunately, K has just had another
good friend diagnosed with breast cancer.
She is a young mother with an infant daughter and just had bilateral
mastectomies. The irony of her
situation is that she is a tattoo artist who spends each October giving tats to
breast cancer survivors.
And then K’s also
now worried about another young woman who has some suspicious lumps. The young woman can’t get anyone to
take her seriously because of her age and her lack of health insurance. For crying out loud! When are the medical professionals
going to get it through their heads that YES, young women do get breast cancer! I know that not all medical professionals
are like that, but seriously, there are far too many out there.
Case in point: had
I taken what the doctor that I saw when I went in for my early follow-up
mammogram referral at face value, my outcome might not have been nearly as
“rosy” as it is right now. The
doctor I saw told me that my lump (that had only been a teeny tiny spot on a
mammogram less than two months prior) felt like normal breast tissue and that
“most breast cancers are closer to the chest wall”. She didn’t want to write the referral for me, but I insisted
– thank goodness! When she finally
did follow-up with me several weeks later after reading my mammography report to
tell me that I should get a biopsy, I had already had my biopsy and had been
diagnosed with breast cancer.
At the time, I was
so livid I couldn’t even talk – huge, I know. Despite the radiologist identifying something suspicious on
a previous mammogram, she had tried to brush me off three weeks earlier. Thankfully, I knew better than to
accept her flippant comments. So
what if I was young? I knew something
wasn’t right and she should have listened to me and taken me seriously. Yes, even after almost two years, her
blasé attitude toward my concerns still infuriates me!!
But, I
digress. I gave K some resources
for the young woman to check out and then promptly got online when I got home
to see if there were more.
Thankfully, there are.
This all got me
thinking. The saying goes that it
takes a village to raise a child, but it also takes a village to get through a
traumatic illness like breast cancer.
The “village” surrounds and protects you. It provides what you need to get you through not just the
day to day, but the year-to-year, milestone to milestone. It cheers when things are going well
and it rallies behind you when things aren’t. The village “raises” you.
Some of my favorite "villagers" |
I was blessed to
be put in touch with so many wonderful people, resources, and healthcare
professionals when I was beginning my cancer journey. Thankfully, I never had to worry about insurance, how the
kids were getting to activities, or what was going to be served for
dinner. I had friends and family
fly in from out of town or drive over from across town (or down the street in Lynn's case) to help out when I
needed it. Through the wonders of
the Internet, I was fortunate to have a “global village”. I met people from all over the world
who happily became my “villagers”.
Now, I’m on the
other side and I’m trying to be a good villager - to help those that come after
me. That being said, below is a
list of resources to check out regarding financial help when dealing with
breast cancer and what your rights are as a breast cancer patient. I’m sure I missed some and that there
are plenty of other sites that have helpful information. Please feel free to share those with me.
http://www.dol.gov/ebsa/publications/whcra.html
(This site explains what provisions insurance companies are required by federal
law to provide breast cancer patients.)
http://www.info-komen.org/site/PageServer?pagename=kaa_breastcancerbillofrights (This is the link to Susan G. Komen
Advocacy Alliance to sign a petition for the Breast Cancer Bill of Rights.)
http://www.youngsurvival.org/
(The Young Survivor’s Coalition is a group that specifically addresses the
needs of young women affected by breast cancer.)
http://www.breastcancer.org/tips/paying/no_insurance.jsp
(This site has info regarding how to pay for breast cancer treatment when you
have no insurance.)
http://www.thebreastcaresite.com/tbcs/QualityOfLife/InsuranceLegal/HealthInsurancefortheBreastCancerPatient.htm
(check out the section specifically about the uninsured)
http://www.cancercare.org/questions/147
(This link provides answers regarding what programs might be available for the
uninsured)
http://www.cdc.gov/cancer/nbccedp/
(This site details how to get free mammograms - if diagnosed, treatment is
covered)
http://breastintentions.org/site/nj/
(formally Breast Friends Forever - the organization that provides emotional,
intellectual, spiritual and financial needs to young women and their families
affected by breast cancer.)
http://colormepink.net/ (Color Me Pink is a
local store in Centerville, GA that caters specifically to the needs of all
breast cancer survivors and their families. Judy Mason is the owner and is very knowledgeable about
local resources.)
http://www.thebreastcancersite.com/clickToGive/home.faces?siteId=2
(Go to this site daily and click to provide free mammograms for women in need.)
http://www.nationalbreastcancer.org/ (This is a great general information
website that I used quite a bit in the beginning.)
http://www.breastcancer.org/
(This is another great general info site.)
And last, but not least, I’m always
available to help out. Call me,
text me, send me smoke signals, whatever.
I hope this helps anyone in
need. As I said, it takes a
village…
Ladies, check your girls. Gents, check your girls’ girls. :0)
Gen =)
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