When I was going through chemo, I was first diagnosed with
exercise-induced asthma. After
different treatments with only minimal positive effects, my diagnosis was
changed to full up asthma, although it was only considered a minor case. As much as it bugged me, I went with it
and dutifully took the medicine they prescribed – two inhalers and
Singulair. One inhaler was a
daily, two time a day one and one when I exercised, so almost everyday. I did this for two years. I was underwhelmed with the effects of
the medicine. It didn’t seem to
help much with my shortness of breath and I still had bouts of wheezing when I
raced which my pulmonologist chalked up to a regular side effect of being an
endurance athlete. It’s not.
I’ve tried going off of my inhalers before, but after a week
of being really short of breath, I’d realize that I really did need them and
start back up again, grumbling the entire time. This summer, my pulmonologist decided that I could try a
different daily inhaler that didn’t have a bronchodilator in it, just a
steroid. “Great”, I thought, “Now
we’re getting somewhere.” And then
he gave me the instructions.
Instead of the traditional L-shaped inhaler, the new one was
tubular. That was not the
problem. It was “how” the medicine
was administered. You put the
inhaler partway into your mouth and sucked. Every single time I had to use the inhaler, I felt like I
was a “fluffer”. If you don’t know
what that term refers to, lucky you.
For those of you that do, you’ll understand my dismay.
After a couple of months of this, I decided once more to try
to wean myself off of this latest inhaler, since it, like it predecessor didn’t
seem to be doing much good. Over a
couple of weeks, I slowly weaned myself off of the offending inhaler, all the
while still using my rescue inhaler with my workouts as needed. I also continued to use my Singulair
despite my misgivings. I had
only recently found out from a friend that Singulair could cause depression or
depressive symptoms in some people.
The pulmonologist neglected to mention this to me when I asked about
potential side effects. I had
started to wonder if my flare-ups of temper might not be exacerbated not only
by living with a teenager, but also from the medication.
Since I seemed to do all right without the daily inhaler, I
started to also wean myself off of the Singulair. I was still breathing pretty well and my post-cancer
allergy symptoms were kept at bay with just taking a daily dose of Zyrtec. Whoo hoo! Two medications down, two to go. After about a month or so off of the Singulair, I asked Joe
if he had noticed a difference in my propensity towards flying off of the
handle. I thought I had “evened
out”, but I wanted an expert’s opinion.
Joe is the closest thing to an expert on me as I can get. Notice a difference? He definitely had.
Meds – 2, Gen – 2
Next up was the Zyrtec. Since it was winter, I figured that was as good a time as
any to go off of the allergy meds – no pollens or allergens floating through the
air, or so I thought. I lasted
three days off of the Zyrtec.
Coming from a family with a weakness towards seasonal allergies, I
shouldn’t have been surprised. It
was still a tied score and a bit of a stalemate, or so I thought.
I was discussing my self-withdrawal from my meds with my BFF
Carolyn a few weeks back. She has
suffered from a multitude of medical conditions for a long time, including
asthma, is a nurse and obstinate like me, so I trust her judgment
implicitly. She too has attempted
to wean herself off of medications with varying degrees of success. Having been her “voice of reason” more
than once, it was time to check in with her.
She didn’t seem to have any issues with my self-weaning
technique until I mentioned that I’d been using my rescue inhaler almost daily
before workouts. All of a sudden,
our conversation took on a serious tone; I shouldn’t be using the rescue
inhaler almost daily as it could potentially cause cardiac issues later
on. Apparently revving up my heart
rate on an almost daily basis is not a good idea. Maybe that’s why they have that disclaimer on the Viagra
commercials about your heart being healthy for sex. Perhaps they should put it on the inhaler packaging as well…
“But my heart rate is naturally really low,” I whined. Seriously, my resting heart rate is in
the low 50s. Not a good idea was
still Carolyn’s advice. “Okay,” I grudgingly
agreed. I would try to not use my
rescue inhaler more than a couple of times a week. So far, so good as long as my workouts are inside. The few times that I’ve attempted to do
a workout outside or a race, I end up very short of breath or coughing and
wheezing. I’ve cut my inhaler usage
down to only a few times a week.
Yay, me!
Meds – 1.5; Gen – 2.5.
I’ll take it!
I often wonder why my symptoms have improved so much within
the past year. The doctors have
told me repeatedly that all of the toxins and side effects of the medications
and chemo should have been out of my system within a year of finishing it
all. If that were the case, my
symptoms should have abated well over a year ago. It was only this fall when I felt like things started
settling down again. Even my arm
stopped swelling as much as it used to.
I now only wear my sleeve about once or twice a month. Perhaps some of us just take longer to
get rid of everything?
On another positive note, after my appointments with Dr. B
and Dr. C last month, I have officially graduated to only seeing them once
every six months for the next two years.
All of my labs came back fine; my tumor marker even dropped from 12 to
9. Dr. C did my annual ultrasound
(aka, the BC gal’s version of a mammogram) and ordered a bone density screening
as he noticed some changes to my posture.
The bone density screening came back normal as well, so I guess I just
need to work on my posture for the next six months until it’s time to get
another checkup.
Smooth sailin.
That’s a good thing. :-)
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